I See You and I am Listening.

“Sometimes, people start to treat me differently, because they think I’m not paying attention,” she said. “Or [they don’t] understand some of the things that I do, like hand-flapping, when I’m overwhelmed.” --Xolie Morra Cogley, age 37, and owner of a dog grooming business who describes herself as “an autistic woman…

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My Bird

Autism PonderingsHe is a flighty bird.This bird of mine.He doesn’t seem to know how to copeEven when he’s not caged. Go, I say.This is your free time to fly. My bird shoots up to the ceiling,And then takes a sharp left,Squawking as he darts down,Dangerously low. Please Stop, my sweet bird.This isn’t safe.Why…

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Ropes in the Trenches

“You’ll miss this, one day,” says the grocery store clerk as she looks in my eyes with compassion and seriousness. “He’s been very hard lately,” I reply as I look into her eyes, and then at Brady as he makes his loud stimming sounds. “MOOOOMMMMMMEEEEEE,” he squeals with a smile…

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What Does Autism Look Like?

What is autism?Explaining autism takes more than a sentence or two. It feels complicated. How does one explain it in a way that truly encapsulates the symptoms and varied external behaviors associated with this spectrum disorder?Will the reader or listener be able to understand what it is like to have…

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Can I Tell You About My Brother?

In 2018, I was in my then 10-year-old daughter’s room sorting laundry when I noticed a piece of paper on the floor near her bed. It was a drawing of a heart and beneath the heart, my daughter had written: “My brother has specials needs. I am special too.” Reading…

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Thirteen

Middle school. A gigantic new environment – outside the boundaries of our school pyramid - so that he will get the support he needs to learn. Alarm sounding at 6am, getting dressed and out of the house to sit on a bus for 50 minutes. “Mr. Bonkin (bus driver) lets…

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In Times of Uncertainty

In times of uncertainty, life becomes like a 1,000-piece puzzle where sections I had carefully placed together suddenly jump out of place in a rippling fashion, causing other parts to dismantle. For reasons beyond my control, they cannot be simply put back together. What began as a dramatic change in…

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The Walk: Little Things Mean a Lot

 “Does the tooth fairy collect dog teeth?”  Brady asks me as I help direct our 5-month-old goldendoodle, Obie, up the hill towards the elementary school. As we stroll together, we walk closer to the “in-person” classroom where Brady will spend the day learning virtually.   The reality is that he is…

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Brady’s Quest in Our Virtual World

“You have to keep the mask on,” I say calmly to my 11-year-old son, Brady. My heart is heavy, my eyes water slightly, and my mind shouts: How can anyone think this is going to work for Brady?  How is this fair to any of the children with special needs?…

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