Ropes in the Trenches

“You’ll miss this, one day,” says the grocery store clerk as she looks in my eyes with compassion and seriousness. “He’s been very hard lately,” I reply as I look into her eyes, and then at Brady as he makes his loud stimming sounds. “MOOOOMMMMMMEEEEEE,” he squeals with a smile…

1 Comment

Can I Tell You About My Brother?

In 2018, I was in my then 10-year-old daughter’s room sorting laundry when I noticed a piece of paper on the floor near her bed. It was a drawing of a heart and beneath the heart, my daughter had written: “My brother has specials needs. I am special too.” Reading…

Comments Off on Can I Tell You About My Brother?

Thirteen

Middle school. A gigantic new environment – outside the boundaries of our school pyramid - so that he will get the support he needs to learn. Alarm sounding at 6am, getting dressed and out of the house to sit on a bus for 50 minutes. “Mr. Bonkin (bus driver) lets…

1 Comment

In Times of Uncertainty

In times of uncertainty, life becomes like a 1,000-piece puzzle where sections I had carefully placed together suddenly jump out of place in a rippling fashion, causing other parts to dismantle. For reasons beyond my control, they cannot be simply put back together. What began as a dramatic change in…

Comments Off on In Times of Uncertainty

Brady’s Quest in Our Virtual World

“You have to keep the mask on,” I say calmly to my 11-year-old son, Brady. My heart is heavy, my eyes water slightly, and my mind shouts: How can anyone think this is going to work for Brady?  How is this fair to any of the children with special needs?…

5 Comments

Inside the Brain of a Creative Child

I hear him whisper-talking to himself as I pause by his bedroom door.  It’s a couple of hours before school time and although I can’t see him, I know exactly what he’s doing as I listen intently to the soft sounds emanating from his room. “Yes, that’s okay.  The We4…

2 Comments

Leaning In and Letting Go

It’s 3:00 pm on a weekend afternoon in Autumn.  I drove my three boys to a skateboard park we’ve been to before.  As we approach the skateboarding ramps, we notice a 16-year-old boy who happens to be our neighbor. “Carlos!!”  Brady shouts out.  Carlos looks up, nods but keeps his…

2 Comments

Befriending Brady

Brady with a kind stranger dressed as Mario. Brady was so happy to meet Mario. "Can I go to your castle home?" “We have got to work on keeping these children engaged with the world.”– Temple Grandin on the importance of connecting autistic children with others and the world around themSurreptitiously,…

3 Comments

Why Not Jump?

“He jumps down the stairs.  He never walks or prances down our stairs.  No.  He thumps and jumps down the last few stairs every time,” I tell the pediatrician who has asked me what Brady does for fun inside our home.  I’m sure the doctor wasn’t expecting my candid response. …

4 Comments